Emotional and psychological support: We provide a space where people can share their experiences and receive support from a community that understands the challenges they face.
Information and education: We provide up-to-date, expert-validated information about HTP, its treatments, and disease management.
Connecting with specialists: We organise events and meetings with doctors, psychologists, and nutritionists who specialise in HTP, giving you direct access to their expertise.
Access to treatment: We campaign to ensure you have access to the latest and most effective treatments, regardless of cost or other obstacles.
Collaboration with drug manufacturers: We develop strategic partnerships with pharmaceutical companies to ensure patients have access to the latest and most effective therapies and to promote open and transparent dialogue.
Counselling and guidance: We provide counselling to help you navigate the healthcare system and access the necessary services, from diagnosis to treatment and monitoring.
Rights and representation: We represent the voice of patients before authorities and the healthcare system, advocating for your rights and the proper recognition of HTP.
Community and social events: We encourage you to participate in social events and activities that foster strong bonds between patients and families, helping to alleviate feelings of isolation.
